name is Nicki Allison Ard and I am a 28 year old survivor of Spinal
Muscular Atrophy, Type II.
was diagnosed with this disease at the early age of
15 months. Back in 1972, doctors were boggled by my condition and not quite sure how to interpret the symptoms that I
make a long and quite tiring story
short, I was diagnosed in Montreal, Canada at McGill University.
Even less was known then about SMA than is now, and after many months of extensive testing, I was given a
diagnosis and my parents were quoted
the heart wrenching words "She will live about 7 or 8
years". These same
doctors began to predict my life and what it would be like. Respiratory
infections, rapid muscular weakening, and
difficulty swallowing were just a few
of the complications that were mentioned.
we came home and began to live our
lives and pray for God to do His will in MY life. The next few years
flowed rather smoothly and then, we reached
another bump in the road-Scoliosis. My case was so severe and
progressing so quickly that immediate surgery
was needed to try and spare my life from lung collapse. I had a Herrington Rod Implant which
helped to relieve the pressure on my left lung. At
this time, our doctor in Charleston told my parents that breathing would
always be somewhat of a task for me.
during all of this chaos in my life,
God was working on a miracle and He knew exactly what He had planned
for this little girl from the very small town
of Pamplico, South Carolina.
visited my specialist for the last time at the age of 9 and can proudly
say that I have had no need to
return to him since then.
believe that everything the
"earthly" physicians did was for my well being, but I truly
believe that God has had big plans for my
have never had a respiratory
infection, never had any problems breathing at all, never a problem
with swallowing or any of the other very tough situations that come with this disease.
simply do not walk and my lifting capacity is only about 3
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