Welcome to SMA Support's Guestbook. It is our hope that you have found the forum you need to discuss all aspects of SMA with those who know it best-the families involved. Please take a few moments to introduce yourself and share your questions, concerns, or news.

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Annette Reed
Monday, Jan 16, 2012
OH
Sorry I've been away from here for way too long. You are all in my heart and in my prayers daily. Madison will turn 15 on Feb 4th! What a MIRACLE she really is! The last 3 years have been very difficult for her but she continues to fight and enjoy life. Love & hugs to all of you!
Lisa Ortego mom to Julia 8 sma I
lovebindsus@bellsouth.ent
Monday, Oct 3, 2011
Happy Heavenly Birthday to Jessica..

Lisa and Julia Ortego
Jeanna, Lizzy and Christen
fightingforlizzy@gmail.com
Saturday, Oct 1, 2011
Happy Birthday in Heaven sweet Jessica. Sent you 8 balloons yesterday. Your Mommy helped us so much with Lizzy.
Love you and miss you Karen!!
Andrea Smith
kanga1102@bellsouth.net
Tuesday, Sep 6, 2011
Nothing new and applicable in the journals, so the RSV letter is good to go! If you can't download it from the site, email me for a copy. :)
Andrea Smith
kanga1102@bellsouth.net
Saturday, Feb 5, 2011
I couldn't let the first anniversary of Madison Burger's Angel Day pass without posting. I am honored to have known her, and to call her family my friends. The memories I have of my son playing with Madison are fond ones. I am ever so grateful to have had her in my life.

Tenille, Kim, John, and Justin... much love to you all, today and every day.
Andrea Smith
kanga1102@bellsouth.net
Wednesday, Jan 19, 2011
Hali... my heart is breaking for you. I don't know what to write, except to say that Kaitlyn will be missed. (((HUGS)))
Lisa Hodges
Wednesday, Jan 19, 2011
It is with a sad and heavy heart that I am writing to inform you all that Kaitlyn Pas passed away peacefully this morning. Hali called me a couple of hours ago and wanted me to post for her. She will email with more details later on. My heart is hurting for them. Fly high sweet Angel Girl.

Lisa
Kim McAdams (Mommy to Skyler, SMA Type I, 9.9 year
oursmaprincess412@yahoo.com
Wednesday, Jan 19, 2011
NonnaKim...

I am so sorry that I missed your post! I haven't visited here in a while. We'll send along an ornament asap for you to add to the memorial tree...just so sorry it won't be for this year :(

Love you guys...lots!
Kim
Andrea Smith
kanga1102@bellsouth.net
Tuesday, Jan 11, 2011
I haven't been over here in a long time. I just stopped in to let any new guestbook readers know that I am a volunteer in the SMA community and I provide free help with SMA insurance issues. Just contact me at the email listed and I'll do my best to make sure that you get whatever you need for your child or yourself.

You are all in my thoughts, always.

(((HUGS)))
Lisa Ortego
lovebindsus@bellsouth.net
Wednesday, Dec 29, 2010
Julia has pnuemonia im pretty sure.. she had 3 rochephen shots was doing better then dont know if she aspirated or what.. but now she has rubbing and wheezing all over...neb chest perc. and cough every 2 1/2 hour.. the problem is the stuff is not coming out. it is thin .. its like her lungs are inflamed.. her sats are good on bipap. but u can hear the stuff. has anyone ever used a steroid injection cuz thats what we are going to do and i was just wondering. we are going to use tobromycin neb tx and change to a stronger antibioic.. cleba...somthing...thanks so much Julia is weak type one..
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