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| Thank you for responding. After working on her last night in the end she slept well and her sats stayed around 94/95 (baseline 98-100 on or off bipap) Today we had issues for an hour or so, but not quite as bad as it can be. She is on azithromycin, and Tobi. All her cultures came back neg. So if there is an under lying infection, no one can find it. Last chest films were also clear. She's 4 so we have no teething issues, reflux.....who knows. There has been no signs, but of course silent aspiration can be an issue. I am going to check with the blue food coloring. Nothing has changed with her diet... all meds are the same. Her bipap settings were increased when she was extubated. Normal is 16/4 incressed to 19. But I have done that in the past..
Brian Weaver warned me this would happen when her tube was pulled, but we were fine at the hospital. Speaking with Mary Bodzo today we were wondering if there could be underlying trauma from the intubation. Swelling etc. I spoke with pulmonology today and he has seen some issues occur several weeks post extubaation. She has an appointment with her ped tomorrow so we are having her throat check and since I am able to get a sterile culture, I'll be bring that in, to see if anything is lurking.
Right now she is sitting on the couch playing we her doodle pad. We'll see what happens when we get ready for bed. One of the worst parts is all the kids are sick. My 2 year old has a cold and ear infection and my 8wk old is so croupy he's doing nebs 4x a day. Thank god my husband is not sick.
I can't thank every one enough for their suggestions and experiences, I dont post often but read when I can..this is the only place for help and over the last 3 years I've learned so much from all of you
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